Well I am not going to lie... the last year has been the most difficult on this journey. I got pneumonia three times and ended up in the hospital twice. The last time was the toughest as I was forced to get a tracheotomy because the pneumonia took away my ability to breathe. It was… Continue reading Ups and Downs
Leigh
I am long overdue for a post, and I can think of nothing that I would rather share with you. I have started this post several times, because I want to get it just right. It is important to me that you truly appreciate and understand one of the most incredible people I know. I… Continue reading Leigh
A Lengthy Hiatus
I have been getting a lot of messages asking where I have been, and if I have declined too much to type anymore, so I thought it was time for an update. I can't believe it has been almost a year since my last post. Definitely a lengthy hiatus! Here in BC, we had a… Continue reading A Lengthy Hiatus
Anxiety
Anxiety is an emotion characterized by feelings of tension, worried thoughts and physical changes like increased blood pressure. People with anxiety disorders usually have recurring intrusive thoughts or concerns. They may avoid certain situations out of worry. Anxiety is a very common disorder, affecting about 20% of the Canadian population according to a 2020 study.… Continue reading Anxiety
My Dad
My dad has always been one of my favourite people. For as long as I can remember he has had this magnetic personality; people have always been drawn to him. When I was growing up my dad was very busy with work and, at times, could not be there for school or sporting events. Even… Continue reading My Dad
I’m So Sick of This
I am sick of beautiful people dying constantly from the horrible disease that is ALS. I wish I could say that this type of message is rare but it's not. In fact, people with ALS are among the highest users of MAiD (Medical Assistance in Dying). Imagine the sense of hopelessness one must feel to… Continue reading I’m So Sick of This
A Botox Update
I have had people wondering how I have made out with the aftereffects of the Botox. I had the injections on November 27 and so it's now been five months. I had been told that the effects would subside after three months. Just a quick recap. I got Botox injections in my legs to help… Continue reading A Botox Update
Missing My Mornings
I have been asked a few times recently what are some things that I miss the most. I try not to dwell on such things because, as you can imagine, it can be quite depressing. On the other hand, it gives me things to hope for when the day comes that a cure for ALS… Continue reading Missing My Mornings
Harry Styles for the Win
So after my rather depressing last post I thought I would lighten things up a bit. 🙂 My daughter Olivia is my caregiver on Saturday during the day and at the beginning of January she decided to implement 'Music Saturdays'. It started with her playing a Harry Styles song she thought I would like, Treat… Continue reading Harry Styles for the Win
A Big Mistake
In my last post I said that I would explain what has been going on physically. Here goes... On November 27th, with a referral from the ALS Clinic, I attended the Spasticity Clinic at GF Strong. The reason for the visit was because of the extreme stiffness in my legs which cause a lot of… Continue reading A Big Mistake